Work with Us, Not against Us - MHI

RE-VISION

05

RESEARCH

Work with Us, Not against Us

Neurodivergent Clients’ Perspectives
on Neurodiversity-Affirming Therapeutic Practices

Farah Maneckshaw and Amishaa Gupta

AUTHOR

Studio Ping Pong

illustrator

illustrator’s bio

Amreeta Banerjee

Alice A. Barwa completed her MA in Education from Dr. B.R. Ambedkar Univerity, Delhi (AUD), in 2022, and is from the Oraon Adivasi community, a native of Chhotanagpur Plateau, Chhattisgarh. She has been an advocate for Adivasi rights and voices as a member of an Adivasi youth collective @TheAdivasiPost, and has been an Adivasi youth representative at UN Climate Change Conference in Glasgow, Scotland, in 2021. Her research interests include education, culture, sociology, and linguistics.

Historically, within the field of therapy, there have been attempts to pathologise and then ‘fix’ or ‘cure’ any characteristic or behaviour that does not fit the dominant idea of ‘normal’. Neurodivergent people have routinely been excluded from such key conversations that impact their lives.

The neurodiversity movement challenges this pathologising discourse by advocating for the recognition and acceptance of diverse identities as part of natural human variation and by standing for the rights of all.

It has begun to inform the skills and knowledge of therapists to foster supportive rather than ‘othering’ practices. However, there is only limited literature on neurodivergence-affirming therapy practices from the perspective of neurodivergent clients, especially in India. Since lived experiences that come from local communities seldom enter global mental health discourse, they are often sidelined while designing interventions.

The purpose of our research is to explore which particular practices in therapy are or are not experienced as affirming by neurodivergent clients and how these practices influence their lives. We undertook qualitative, semi-structured interviews with nine neurodivergent adults from India who were experiencing neurodiversity-informed practices in individual psychotherapy. Participants were required to self-identify as neurodivergent (within this umbrella, clients also identified with specific labels like being autistic, ADHDers, etc., or having dysgraphia, OCD, etc.,) and to have been in therapy for at least twelve sessions. Several of our participants identified as queer and non-binary as well.

A limitation of the study is that people who have access to therapy and the language of neurodiversity are also likely to carry caste and class privileges. Further research needs to be done to address these gaps. The field of global mental health too notes that no model of disability may be universally applicable.

Neurodivergence and Mental Health

In a world designed for neurotypicals, neurodivergent people experience various mental health concerns. Many of the people we interviewed spoke about feeling like an imposter or ‘not normal’ their whole life because of struggling with things that were ‘supposed to be easy’, like remembering things, paying attention, interacting with people, or doing chores. Such neurotypical expectations led to mental health concerns, made them more vulnerable to abuse, and caused other difficulties in relationships. These experiences can be conceptualised using the ‘minority stress model’, which attributes mental health challenges faced by marginalised communities to systemic discrimination.

Non-Affirming Therapy Practices and Their Influence

Most participants had experienced some therapy practices which they considered non-affirming. Several had experienced therapy that was harmful, leading them to discontinue sessions. Actively harmful therapy experiences included being accused of lying on therapeutic assessments. This would be universally considered malpractice or misuse of power, but these are especially likely to be harmful to neurodivergent people, who may be used to camouflaging their feelings and needs and are highly sensitive to rejection. 

Almost all participants also reported unhelpful experiences with therapists who gave excessive directives and advised them in non-collaborative ways, such as misdiagnosing, directing the client to take medication, and being dismissive of the client’s neurodivergent identity without discussing it. This reduced trust in the therapist and infringed on the client’s autonomy. This is reflective of research on neurodivergent people being weary of unfair hierarchies in relationships. 

Other practices participants considered non-affirming included being judged for ‘not trying hard enough’ to work on their mental health. Participants felt they were being held to ableist neurotypical standards, which created further shame for them. Women participants spoke of therapists victim blaming them when they were in abusive relationships, highlighting the need for an intersectional therapeutic approach. 

Significantly, several participants reported therapists not noticing their neurodivergent traits. Often, clients had done their own research and brought up their neurodivergence with therapists or had visited many professionals before being told they might be neurodivergent. This may be because neurodivergence presents differently in gender and other minorities, unlike how it is described clinically. 

Some of the participants still used language from the biomedical model to describe themselves, such as ‘comorbidity’, ‘symptom’, ‘suffers from ADHD’, and ‘dysfunction’. This led us to question whether their therapists were unintentionally reproducing the idea of neurodivergence as a deficit without deconstructing the pathology paradigm with them. 

Neurodiversity-Affirming Practices and Their Influence

While non-affirming practices made participants hesitant about seeking therapy again, some considerations that helped mitigate apprehensions about therapy included being able to find a therapist with similar values and beliefs, identities – queer, neurodivergent, polyamorous, etc., – and, in some cases, opinions on macro issues of the world. Identity-based matching can allow the clients’ identities to be safely integrated in therapy with increased hopes of identity- and oppression-related competence in the therapist, thus facilitating a sense of understanding and rapport. 

Participants also spoke about intentional practices that made for an affirming experience. One example was the therapist validating the client’s struggles with neurodivergence and acknowledging certain actions and emotions as ‘normal’ – such as touching one’s face while talking to self-regulate, moving during the sessions, being overwhelmed by something that does not usually overwhelm neurotypicals – experiences now accepted as part of neurodivergent culture. This made participants feel understood, compassionate towards themselves, and liberated from self-blame as they experienced a dismantling of neuronormative expectations. They also felt that their neurodivergence was appreciated, improving their confidence and helping them ask for accommodations in their relationships. 

Another significant finding was how much participants valued their autonomy in the therapy space. Therapists checking with clients about activities comfortable for them, collaboratively setting goals, letting clients steer the conversation, etc., place the locus of control back with the client. In a world that actively thwarts their agency and increases their internalised ableism, infantilisation, and helplessness, such practices can make them feel more in charge of their own lives as it places the therapist and the client on a more equal footing. 

Other affirming practices included therapists making the experience more accessible for clients, by removing a noisy clock, closing the windows, turning down the lights, or providing session reminders. This helped clients build a ‘second skin’, which acted as an added layer of safety and comfort within the session.

Participants also spoke about therapists’ attentiveness in observing and understanding them, which allowed them to discover their neurodivergent identity and gave them the language and framework to understand their actions as opposed to seeing themselves as ‘evil’ or ‘a bad person’.

Summing Up

Neurodivergent people experience additional mental health challenges due to systemic ableism. Conventional therapeutic methods and boundaries may not be helpful for them, instead needing therapists to be well informed on neurodivergence and be flexible in their approach. Given the higher probability of abuse faced by some neurodivergent identities, coupled with their need for autonomy, therapists may be required to pay close attention to issues of power and social justice within the therapy space. This is in line with existing recommendations on transforming mental health systems globally, which state that it is important to embrace a rights-based approach and centre people’s lived experiences. 

We found that while neurodivergent people struggle to find an affirming therapist, when they do, they recover from crises, experience more confidence, and ask for accommodations in relationships. It helps them understand, acknowledge, and appreciate their neurodivergence.

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